Getting the Run-Around with CFS/M.E.-Lyme-Fibro?

Health professional finds cure for daughter when medicine failed

The Chrysalis blog was set up to direct people, no matter where you are in the world, to finding answers for free to your health – but it began with the fibromyalgia pain of Chronic Fatigue and Lyme – I vowed when my daughter recovered I would share how we did it. She did get better and we do share – but every day I see the same thing: now that it is medicalised it is about diagnosis and chasing symptoms (ie perceived depression and myalgia) – NOTHING about healing or undoing the various causes. And people have given up by the time they find this blog.

How many years have you been waiting for a ‘cure’?

I found that my facebook pages were taking hours to write every single day, but the information was becoming lost due to the increasing number of posts and for visitors with CFS/lyme/fibro it was just too difficult to navigate. Some had a great support network to help print off posts and make up a treatment file but it still wasn’t ideal and the very thing I fought to prevent – sufferers slipping through the net – was still happening.

So, I rewrote all existing posts into articles – and new ones, to my blog, and now direct visitors here, in order to allow them to find answers more easily. I appreciate it is still not ‘easy’ – especially when concentration, ordering, food prep etc, is a vital part of your recovery. However, compared to many other ‘CFS experts’ and their sites (especially the high fee-attracting ones) I know it is much easier as you can avoid the run around. I found these sites difficult to navigate and very secretive, and in my view, doing little more than holding the sufferer to ransom until they paid up, while thinking they had no hope elsewhere. I could not believe how many were raising funds to be sent anywhere around the world to find answers!

CFS has become a business rather than seen as an illness as bad as cancer

More than once I was told that some of these experts, and many of the patients who promoted them, had not yet dealt with a single truly successful case, nor had the patients even got close to a cure. The same can be said for the medical dealings with CFS, fibro and Lyme disease; they hear that yes, auto immune disease is real and yes, it is now accepted in the system so start taking cases while the hapless sufferers have no idea that as yet, not a single case has been cured by this expert they have placed their trust in. This is alarming; I find it incredulous that anyone would claim their protocol could work, if they were yet to see a single cure! Yet these are the services that seem to be attracting the paying customers – all about $$$ while baffling with science…

Shock treatment and removal of vital organs?

And sadly, this is the direction medicine has gone. My first cases of CFS were seen in my nursing days – the standard treatment back then was shock treatment, anti-depressants and hysterectomies for the ladies. I wont repeat what I heard doctors joking about behind the patients’ backs. It hasn’t changed much.

CFS is NOT depression!

In 2006, which is relatively recent, when my daughter became unwell, we spent the better part of 3 years doing the rounds of around 20 different doctors/clinics/hospitals before we realised that yes, I would have to do it alone even if it was technically illegal. That old deja vu of ‘this is what I have studied and rehearsed for my entire professional career’ happened yet again as it has done so many times in my career.

‘Medical treatment’ in this instance involved anti-depressants, addictive analgesics and threat of admission into the mental health system which we refused. My daughter wasn’t depressed, and she was sick of being unwell. If, in frustration, she burst into tears, she was once again reminded that she has depression.

I wonder dear doctor, if you had burning, searing pain that drove you to despair, enlarged abdominal organs that left you unable to eat or even breathe properly, neurological pain that felt like your skull was open, and a deficit of energy that left you dependent on others to be able to walk – through all this, to be told there is nothing wrong with you, that it is all in your mind, and you need addictive drugs to make you feel happy again and only then would all your problems go away – would you cry?

Or perhaps you would feel angry when well-meaning family and friends asked you each and every time you saw them, “Are you STILL sick? Don’t you think it’s time you go over it?” I am certain you would.

Fun was made of our veg*n diet, and we were told a number of times that as I do not vaccinate my children, this is what caused it. In our case my children were spared the flu vaccine link (one of many vaccines linked to auto immune diseases and myalgia) however they had been exposed to a number of chemicals by default despite our organic lifestyle. Vaccine injury had also happened amongst my siblings and our children bore the brunt of DNA damage.

One doctor actually Googled CFS/ME in front of us, as he had never treated it.

He sent her home in a wheelchair with the words, “Prepare for the worst. If she stops breathing again tonight, please bring her back. But she may not last the night. If she does, take her to your doctor as we do not have the ability to treat her.” So we had a teen who may or may not last the night – but as they had not dealt with it, go home. It was a long night – especially as earlier that day, we had stood in the local welfare office trying to at least recoup some of the money we’d lost (I could no longer work but did not qualify for a carer’s allowance and she had not been able to work for some time) – she collapsed on the floor and lay there crying and shaking. People – many who looked like actual drug addicts openly laughed at her and a few less than decent comments were made to her. I stood there crying and that was when I vowed to share any answers I found, once I found them!

Anyway, as there are a number of articles on my blog with the protocol and other associated aspects related, and I hope you eventually can read them all. Apologies to those who still find it difficult, hopefully the list below will help make it more clear.

The effort to make one doctor’s visit can have repercussions for days

The truth is, if you had cancer or any visible widely promoted/funded/supported illness, you would have some form of support and understanding. How long does it take you to recover after each visit to a doctor or other practitioner? My daughter usually took an average of 3 days, during which time she didn’t eat, couldn’t have the light on, and shook with pain.

I want to help you avoid this. One thing that may help is knowing how much it takes to even make and keep an appointment and the days of recovery following; you are able to avoid that stress, while ordering what you need to get better, from the comfort of your own home. Hopefully your support network can do the groceries and other needs. It would be nice to have a dedicated service in each city but I guess that will only come with more awareness and honesty in treatment. Sadly for now I don’t see things changing – I have lobbied our government and health systems as many peers have done in other nations and so far, there is no interest. Many of these networks are sufferers or at least former sufferers without outside support.

The great thing to know is that I have had many patients I have never met, across the world, who don’t even have a good support network and have limitless cash – who have been able to return to health, after previously using their life savings and many years in the system without any success. Almost every day I am contacted by someone else thanking me for the protocol.

So what is CFS, really?

As a syndrome is a mix of symptoms that do not fit disease paradigms, so too with CFS – it is a set of seemingly unrelated symptoms – meaning medicine has not yet come up with a specific disease cause – or related patents to make big pharma more money. In truth, there is no one cause.

Known triggers/causes, all of which I have witnessed and treated –

  • insect bites/stings (Ross River, Lyme, etc)
  • vaccinosis or other medication side effects
  • surgery and titanium type allergies (which, interestingly, is not recognised in medicine and like many natural forms of assessment and treatment, one must go outside of medicine to find answers, at their own expense)
  • hormonal damage (adrenals, thyroid, pituitary, ovarian, gonads, etc)
  • allergies triggered by parental toxicity or environmental damage
  • parasitic infestations or mould toxicity/allergy
  • major deficiencies and injuries – it can be a mix of two or more
  • Epstein Barr virus or the flu

If you do not yet have a diagnosis, please stop and take stock. This latent need to get a diagnosis and validation does nothing but tell you what you already knew – it wont offer a magic cure. And it should not be necessary for you to go through the long, drawn out process (often unsuccessful) of trying to get one within the medical system. Please see my assessment page – which is a comprehensive assessment, with additional CFS assessment for those seeking answers – Comprehensive assessment HERE – and indicate upon application, that you would also like the complimentary CFS assessment. This is more detailed than ever before and will allow me to determine whether it is CFS, lyme, fibromyalgia or another disorder.

The stages of recognising and treating fibromyalgia, Lyme and CFS

Stage one – understanding invisible disease. It is no one issue, no magic pill is going to ‘fix’ it. It is a toxic attack that has taken some time and trauma to develop, affecting your nervous system and vital organs – and in turn, every aspect of your health. Usually misdiagnosed for years, much time has passed, allowing symptoms to develop unnecessarily.

Have you been exposed to pharmaceutical or environmental/industrial toxins/chemicals? Perhaps your decline began after a vaccine?

Stage two – starting on the correct detox, diet and lifestyle is as vital as is the correct supplementation. There are many, many simple tips, such as the common herb ginger to help with abdominal inflammation and pain, as well as hormone imbalance. You need your support network to also identify with your illness, as most people fail to understand completely unless they know how it feels, or what it is.

Do you notice that after certain foods, you feel worse?

Stage three – There are so many diets out there, including for invisible disease that it makes your head spin. And it makes you sick eventually, if not immediately. Invisible disease is about inflammation.

Think about it – acid causes swelling and inflammation and is linked to ALL pain and illness. So what causes illness? Primarily what we put into our bodies but also what we put onto our bodies, our thought processes and stress. So how do you take your body from an acidic mess full of inflammation and pain, to a pH neutral, calm, pain free HEALTHY, living individual?

There is no alkaline pill, no magic vaccine that is going to change things if you make no other changes.

If you live acidic, you live with inflammation.

Most newcomers argue with this, yet eventually they get it. So how do you trust what is the correct diet, and how do you learn how to pull it all into one cohesive program? The following is just that – a combination of years of study and various trials and articles and books – and tests. Most importantly, thousands of cases were involved.

anti-inflammatory, alkaline diet

Stage four – the correct medicines – while I agree with analgesia if it means relief and sleep, I do not see it as an effective treatment ideal – many are addictive and come with a host of side effects, even death. But in the short term or occasionally, yes, please take them. After trialing thousands of dollars’ worth of what I would term excellent supplements (including practitioner only and some of the most expensive and well researched options) I began reading up on certain biochemical research.

supplements instead of food

Stage five – this wraps up all the adjuvant tips and ideas that have many benefits and even increase the effectiveness of the steps above.

  • With diet, I am yet to see a single sufferer who is not gluten sensitive – check out the symptoms of GI –

what is gluten intolerance

  • Hormone imbalance is a major factor in invisible disease – including lupus, ALS, MS, MD and much more. And it is one of the most mismanaged health sectors. Just a little here with a few tips on how to ensure your hormones are at their optimum level – you will be shocked –

what every mother should share with her daughters

  • What about the ongoing arguments that natural therapies don’t work? This has been an ongoing very clever spin exercise, with little truth, other than fear and money – why do so many accept a death sentence without even trying”

don’t accept a death sentence

  • What about pain relief? Why are so many sufferers now registered drug addicts?

Why are so many now needing the assistance of drug detox and pain clinics? And why is the suicide rate so high in sufferers? –

pain relief without addiction

  • What about scams? How do you know the protocol is safe or effective?

how to avoid CFS scams

Feel free to print off this information and share with anyone you know who may need it.

On top of the above suggestions, please use the following Rx protocol – it can be ordered online at a fraction of the cost of any competitor. The general rule of thumb is for every year you have been sick, it will take a month to reverse but this can be dependent on many varying factors. Be patient and just know you are doing the right thing –

1. Fibromyalgia symptoms – boron – buy here

(Research on effects of boron – why do you need boron?

2. Fibromyalgia/adrenal tonic – buy here

3. Anti inflammatory – buy here – turmeric based pain relief

4. Superfood, probiotics, herbal, adaptogenic, tonic – buy here

5. Anti inflammatory fucoidan – buy here

(Fucoidan effects on fibro/CFS/lyme – read here)

6. Anti parasite/mould – buy here

7. Noni superfood tonic – buy here

8. Colloidal minerals – buy here

This is the basis of the treatment – these are not my products – I simply find the most affordable, effective options and share. Please advise if there are any other symptoms you need help with – no two cases are identical and each can be associated with a whole range of health issues. The above list includes practitioner quality recommendations at a reduced price. ALL the products listed above are needed – as CFS is not a single symptom set and requires a multi faceted attack. Adjustments to the protocol are made as you respond and recover.

Feel free to contact me for individual symptoms that you would like advice on supplemental and alternative treatment.

Just know it can be done!

  • Homeopathic treatment currently being researched and formulated. I hope to have this available by the end of 2017. Find more information here

 

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3 Comments

  1. Hi Chrysalis, thank you for sharing your journey. It is so much better to find it all in one place and with links to products is amazing. Thank you. I found some of the links didn’t work though. It is probably me, every time I touch the computer something goes wrong. I can’t wait (though money issues mean I will have to) to start your suggestions.
    Thank you again, Heather

    Like

    1. Thankyou Heather. It is my goal to allow sufferers to source a one-stop shop so to speak in order to avoid the run around and expense of finding answers, not to mention the added suffering just to attend useless appointments. I will check the links again and if you can check back in a few hours it will be sorted. I am currently finding additional treatment suppliers as I have had a few issues with some of them.

      Like

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