So who’s got CFS?

I often wonder if this question shouldn’t be ‘Who doesn’t have it?’ 30 years ago, CFS was said to affect 1 in 1 million people and was as rare as it was misunderstood and dismissed.

Today it is said to affect 1 in 1000 people, and I have read in some areas it is as high as 1 in 100. Yet medically it is still dismissed and badly handled. Many are diagnosed as having depression or even hypochondria. More sufferers are addicted to pain medication and anti depressants than in any other health area – and most cases are not handled well at all, if at all.

One who deals with, or has, CFS/ME, lyme or fibromyalgia soon is able to discern who ‘has it’ and with the magic of the internet it’s often easy to confirm it. It also leaves you wondering about people from the past, very badly handled medically, suicides out of frustration, and chronically incapacitated without apparent cause.

I recently stumbled upon a number of websites that list a who’s who of CFS – and it’s very interesting. Please refrain from the urge to smack your forehead and say ‘Of course!’ Many have been diagnosed with mental illness and addictions – rather than actually dealing with what is underneath. Most people don’t understand this has been around since the start of the industrial revolution. So, who is on this unfortunate list? It’s by no means concise but it is interesting –

  • Cher
  • Stevie Nicks
  • Michael Crawford
  • Flea (Red Hot Chilli Peppers)
  • Blake Edwards (Julie Andrew’s husband)
  • Laura Hillenbrand (author Seabiscuit)
  • Florence Nightingale
  • Charles Darwin
  •  Marie Curie

  • Venus Williams (along with Sjogrens)
  • Barry Sheen (racer)
  • Duchess of Kent
  • Leann Rimes
  • Laine Beachley
  • Bea Arthur
  • Cathy Lee Crosby
  • Laura Dundovic (Miss Universe)
  • Shelley Taylor Smith

 

It’s a very interesting list and I have no doubt is much larger – but in most cases, often misdiagnosed and mishandled. Hopefully, those in the public eye will eventually be heard – and not to spout about some dodgy treatment or promote some drug therapy. We can live in hope that someone who has been successfully treated will speak out and the prognosis of the everyday sufferer will change! 

 

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Author: Chrysalis

Sharing the truth in health care with the public - especially those in nations where it is illegal to know the truth, for those who cannot afford health care, and for those who, through chronic illness or terminal disease are desperate to know the truth. And I will use any means necessary to do so. This has cost me dearly over the years - legally, professionally, financially and personally - but each time I feel as though it's not work it, I find I HAVE to keep going. After the recent loss of our adored son in law through medical negligence, I vowed to never give up the fight that I began in orthodox medicine, then as a naturopath seeing proof that there are answers outside of medicine, outside of surgery, toxic chemicals and big pharma's control - and when my daughter almost died through medical error. It's easy for some sectors of the community to dismiss someone who walked away from orthodox medicine. It's also easy for them to dismiss anyone who has qualifications in alternative medicine, regardless of how many lives they have saved - and regardless of whether most of those lives were failed by orthodoxy. Yet spend years in between, working in medical/pharma research and really get the inside story and then watch the worms come out of the woodwork. It's an interesting conundrum to see just how people who on the surface appear to be intellectual and reasonable, all of a sudden shoot off the Richter scale of common sense - after all, there is no way on earth someone who has a sound knowledge of facts, could possibly, actually know something they don't. Regardless of how my peers see me, I will spend the rest of my life getting the truth out there. It's astounding how much free time some of these poor excuses of humanity have, and how they believe they are discovering some amazing new thing with their hard hitting 'journalism' - imagine if all that effort could actually go into something decent and worthwhile.

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